by Victoria Burns
•
16 June 2025
< In this episode, I’m joined by Jess Dineen, who is both a PhD student and a neurodivergent consultant, speaker, coach, and founder of NeuroNatives. We discuss the strengths and challenges of being in academia with autism, how autistic people can support and advocate for themselves, and how individuals and universities can better support neurodivergent people. Whether you are autistic yourself, or you want to be more inclusive and supportive of your autistic colleagues, Jess shares both lived experiences and evidence based strategies that will help. Links I refer to in this episode Connect with Jess on LinkedIn and find out more about her business Neuronatives . Transcript Vikki: Hello and welcome to the PhD Life Coach podcast, and this week I have another special guest with me. This week I am joined by Jess Dineen, who is the CEO and founder of Neuronatives. So, hi Jess. Jess: Hi Vikki. Great to be here. Great to be on the podcast today. Vikki: I'm so excited to have you here. Why don't we start off as usual people, just tell people a little bit about who you are and what Neuronatives even is. Jess: Sure. So, Neuronatives is a consultancy training company to raise awareness, and make workplaces more neuro inclusive. The whole idea of the business is very much to back what we're saying with science. So really using journal articles, research papers to support what we're talking about. And also backing it with lived experience as well. So I myself late diagnosed autistic and A DHD , and so a lot of what I talk about is based on my lived experience and also kind of client's experience as well. Vikki: Yeah. And what do you aim to do with the organization? Jess: The aim eventually is to run tailored consultancy. So starting off, you know, right at the top, kind of strategy, getting workplace, companies being more neuroinclusive. So thinking about their long-term vision, their hiring policies, you know, everything from recruitment to retention to then how you are managing your team. Um, thinking about your workplace policies, and then down to individual manager training. So how to get the most out of your employees and support them. 'cause the stats are there, you know, the more inclusive your workplace is, the more productive your workplace is, and the higher retention rates it's gonna be. Jess: So that's the aim. And also alongside that we hope to offer more coaching as well. We're quite a small business and we're right at the beginning of the journey but taking very much a tailored approach and not just framework, not a tick box exercise, to make real change for neurodivergent individuals. Vikki: For sure. Yeah. And why does that feel so important for you right now? Jess: I think being late diagnosed myself and the amount of. Kind of effort that I had to go to advocate for myself. And even at the start of the journey, getting diagnosis, getting the forms done but then also in the workplace what I needed. Jess: When I asked for adjustments, you know, to go from working five days in the office to a few days in the office, I cried 'cause I was acknowledging that I needed that support and that that was okay. I don't want other people to have to take all that time to figure that stuff out. I want to be able to it already be in place. Jess: And I think also the amount of stress employees have who are neurodivergent around, you know, advocating themselves, having these conversations, knowing where to start. It should already be happening at recruitment or even hiring stage, um, these conversations as to how to work with me or, you know, what best practice looks like. Jess: So neurodivergent individuals are often already tired just by living life. So to have to advocate for themselves and then advocate for themselves in work, is just another layer of, of complexity and stress, especially if you are autistic. From my personal experience, the kind of social nuances and, how you perform or how you're masking at work is another barrier I guess. So I'm trying to remove barriers, I guess is my, is my, long and short of it. Vikki: Perfect. And as you know, but just for the listeners, we are gonna mostly focus on autism today. So I know you have expertise across both autism and A DHD, but we've had an episode with Dr. Alex Conner on before. So we've talked about A DHD quite a bit and because of my own proclivities, it tends to come up quite regularly throughout the episodes. Vikki: Yeah. And, but I wanted to really get somebody in who has expertise in, in autism specifically. Sure. Yeah. Obviously everything you talk about will apply to both and don't feel like you can't talk about ADHD stuff, but I'm really excited to have somebody with specific expertise and experience in autism, to talk about it. Yeah. So maybe let's start there actually, for people who are less familiar. What actually is autism? Jess: So autism. So it depends which lens we look through. So you might look through the medical model. So if you go to the DSM, so the Diagnostic Statistical Manual of Mental Health Disorders, a word I hate is very much called a neurodevelopmental condition. Jess: So usually diagnosed in childhood, hence neurodevelopmental during the developmental period. Um, and it's where, um, so this is all kind of the clinical terms, not necessarily reflecting my opinion, how it should be viewed. But where someone might have challenges, significant challenges in social interaction, communication, and that could be also difficulties and communication skills, social behaviors that significantly impair daily functioning. Jess: And they do vary from one person to the next, so they might have kind of special interests or all sorts of different things. There's different areas in which you can be diagnosed, but often it looks and presents differently between males and females, and a lot of women are being diagnosed later due to a kind of broadening of the criteria, but also more visibility of what it looks like in women. Jess: The word kind of deficit disorder is something that I do not agree with. I'm very much against the medical model , but as if you wanted to look for kind of a diagnosis that, that is what it, you would find in the kind of clinical literature. Vikki: And how would you prefer to define it? Jess: I definitely would prefer to define it as kind of differences in communication styles, differences in social interactions and behaviors. I wouldn't say I am deficit. I would just think I'm maybe more, for me personally, more direct, more assertive. I hate small talk. I do it because I know that that's what I'm supposed to do, but I don't like it. I think it's also remiss not to say that everyone is unique. So all autistic individuals are different. So you might find someone like myself who, you know, reasonably social and you know, can have a conversation and make eye contact, but it does time me out. Jess: So I guess, older, older kind of literature would say, I'm high functioning and then the older literature might also say someone's low functioning if they're not able to do those things. I think it's, I'm just functioning. You don't see me on the days where I'm not talking and I'm burnt out and I don't leave my bed. Jess: So I think I definitely have challenges. But I would say there are more differences in communication styles and some people love my approach and love my style. Vikki: Perfect. And I know you work across a whole range of different companies and organizations, but thinking specifically about academia, I know you are doing a PhD yourself. Yeah. What challenges do you see autistic people having when doing PhDs and in academia more generally? Jess: I'm actually in my second year of doing a PhD now, so I think I've managed to see a bit of what I've experienced and then others around me and those I've worked with and I think the kind of number one challenge is communication, and expectations. I think in academia we have all sorts of tools. We have email, we have teams or Zoom, you know, whichever the university uses . And I think it's really good at the beginning to start off with, you know, what communication style does your supervisor like? Is it an email, is it teams message or a teams meeting? Jess: Is it a face-to-face meeting? And what are the expectations? I think challenges that I've come across is what are the expectations in terms of communication? What is their role? And some supervisors may be very clear and some may not be. And so I've had to learn the hard way as to what is expected of me and what methods work for my supervisors. But I think also in academia, there's quite a lot of unwritten rules and unwritten kind of structure and hierarchy that is not necessarily apparent to autistic individuals, especially, you know, someone like myself. It's very easy to make those mistakes. So I think it's being aware of those and if you're able to ask someone in the team or if you're able to get that awareness that's really important. Jess: So that's the one. I think second is again, expectations, but more in a kind of deadlines, you know, what's expected of you by when, and agreements as to what that looks like. Sudden changes or sudden like, you know, asked to do a presentation or something really unexpectedly or things like that are very uncomfortable, very, very stressful for those in my experience who have autism. So knowing what the semester looks like, knowing, you know, if you are on a scholarship, what you're teaching, having advanced notice of when you're teaching it, what content you're teaching, not getting it, you know, like three days beforehand. Vikki: I was really interested in you talking about the sort of unwritten rules. Yeah. And I think some of the stuff around how seriously to take particular comments I've seen , people with autism struggle with in academia mm-hmm. Where supervisors make a sort of slightly throwaway comment about, oh, it might be good to add that analysis or whatever. Yes, yes. Um, and to be honest, it's confusing for all students when that happens. I agree. I agree. But if you particularly struggle with sort of the unwritten side of things as it were, yeah then figuring out, does that mean I should do it? Was that an idea? Was that an order, was that a suggestion? What, what did they mean by that? I've certainly seen people come unstuck with that sort of thing where, and you can tell me whether this is something that's accurate or just sort of what I've seen with my clients, but I see that, that my clients with autism tend to fall on the side of taking it as an actual instruction and definitely doing it. Jess: Yeah. That's a really great point. Vikki: Rather than a Did they mean that, I dunno. Kind of, yeah. Jess: Yeah, yeah. Absolutely. And I think the one thing that I've learned from that is thinking about having a summary of what was discussed in the meeting and what are the action points. So then you can kind of nail down like what you know. The supervisor said this, did they actually mean that? 'cause they have to sign that form and get it back to the senior team, whatever. So a challenge would be, like you said, is taking what they're saying is gospel or literally, then doing a lot of work. And actually that wasn't needed or what wasn't the case. , I remember back when I did my master's, me and my supervisor, and we had to publish the paper actually but she'd asked me to go and look at some journals that might be suitable. So I went away and did a table, the impact factor, the name of the journal, the submission diff, like how it all worked, the, maybe the referencing style. Jess: And I think she just meant a cursory glance. But I had gone and done an Excel table and when we had our next meeting, I was like, this is the table what you asked for. And she was like, oh, and she didn't mean that. And so it was just quite amusing 'cause I was like, okay, like I really need to kind of double check with her and, you know, she does that with me now, is double check what we've agreed to. Vikki: Yeah, for sure. I guess the other one that I've seen a little bit is, and again, I've seen this with people who don't have autism too, but where people get quite fixed on this is how I want to do this study. Mm. And then I think it's an interesting balance between how you sort of, um, what's the word? How you sort of respect and honor the fact that it's their PhD and that this is, this is what they want to do. And sort of understand the fact that there might be less cognitive flexibility in terms of looking at other options and seeing that different ways could work. Vikki: Yeah. Versus your kind of supervisory responsibility For sure. Sort of advice. Yeah. That might work. I'm not sure, but it's high risk or it's not angled at the journal I thought we were going for. Or I wonder if you me, whether that's something you've experienced or seen. Jess: Yes, yes. I think, task switching is challenging for both, you know, those with autism who might have mono tropic interest, where they're focusing on one thing at a time or where those who have ADHD kind of, this is what I wanna do, I'm not, so what I'm doing right now and this is my hyper focus, don't you dare shift my attention. And so I think. For sure. I think that has definitely come, come up with me and clients where you've set up, but this is my intention, this is the gap in the research. This is where I'm going and this is what I'm doing and I'm gonna answer this question. But then whether it's miscommunication or new things come to light where there's a change needed. Jess: And I've recently gone through one where I've gone from doing a systematic review to now, including many more studies in my systematic review. So from 18 to now 41, to then being like, oh, let's, let's do a meta analysis, which will create much, you know, richer research, rich insights. However, it's kind of, for me personally, it's been really hard 'cause I dug everything, you know, dug deep and, and kind of really went down and got all the information and spent almost a year on the systematic review to then be like, actually this isn't right. Jess: This, we need to change. And I think. It's really difficult. And I think that's the first thing is I would for any, you know, anyone who's listening, like it's as a student or whether you're a supervisor who's looking to help their supervisee is thinking about acknowledging that it's difficult and acknowledging that change is hard. Jess: And it is down to the, the PhD student at the end of the day, like, this is their choice and their PhD. However, you have a supervisor for a reason, right? You have a supervisor who has experience, who has guidance and can help you , hopefully to success, you know, to, to completing your doctorate. So that's something that is, has been important for me to remember is I don't know what I'm doing. Jess: The supervisor might not either, but it's really important to, to remember that as how challenging it is you want to create your best work. And if that is the best work, then that's important to go on and do. And that's something with clients, it's, it's having that conversation of. Yes, it's difficult and let's, let's hash it out and let's get through it and talk about it but what outcome do you want to have? And where do you want to be and how do you get there? And, and don't get me wrong, that kind of wrestling and that, you know, changing topic and changing direction can bring up all sorts of emotions, anger, fear, frustration , all sorts , lots of procrastination 'cause I don't wanna start with new task, new topic. Um, yeah. And, and kind of strategies that I've kind of gone with is to say, okay, let's look at this kind of big ugly mess and how do we break it down? Like what are the tasks, you know? Okay. First we'll read about meta-analysis. Look at the couple of different kinds of meta-analysis. Think about the different, you know, whether it's random effects or fixed effects, for example, and this is when you're going granular, but, and then breaking down, like, okay, so let's look at all the studies. What kind of analysis did they do? But like breaking it down into steps. And I think that's something that both, I, I guess someone who has a ADHD and autism for myself, I need to break things down into chunks, otherwise it feels massive and I can't get anywhere. So something that has helped me working with clients to say, okay, with your supervisor, if you can get a check-in point, even if it's 15 minutes, every two weeks, have some goals and these breakdown steps and check in. Jess: And that way you don't have to wait till the, you know, monthly or bimonthly supervisor meeting where you haven't got to where you said you'd get because you're so overwhelmed. So it's realizing that I guess one size doesn't fit all when you're supervising. For the students who are neurodivergent, they will need different things. Um, but on the flip side, your students may be bounds and leaps ahead with the right guidance because they're like, oh yeah, no, I'm know what I'm doing now. Like, I'm, I'm focused and I'm interested and, you know, I can get a loads more done than perhaps, you know, a neurotypical student might do. Jess: I think it's really important to remember that you are, as an autistic individual, you may have strengths that are, you know, way above and beyond, you know, a neurotypical person. There is such a thing as that call, a spiky profile that you may have come across, where you know your executive function, you know your different skills, whether it's organization, memory, time management, you may have, you know, uh, drops, you know, where it's maybe not so good but then huge peaks where your skills outnumber, you know, the neurotypicals on your team. So be very much looking like a, a spiky profile. Um. And, there's quite a few occupational psychologists who do a lot of work in that area around neurodiversity as well, that I recommend looking into Almuth McDowall and Nancy Doyle, and many more names, but they focus a lot on kind of strengths-based coaching. What are the person's strengths? What are they really good at? Some clients it might be attention to detail, so really researching to the nth degree on one area and knowing all about it and being able to tell, you know, the supervisor or teach a topic, whether it's a class, all about that specific area and bring so much passion to the topic because they're so interested in it. Jess: But then also you are coming at something with a different angle, a different perspective, because your brain looks different. There are studies that show the brain looks different under an FMRI scan. So the different parts of the brain are, I don't wanna say different again, but look visibly different. And so remembering that your brain works differently and often your perspective is different, is a huge strength. Jess: So another strength that I've come across with clients I work with, but also within myself is often those with autism, have experienced an awful lot of difficulties, in which case they often have a deep level of empathy and understanding, and can really relate to a lot of people in many different ways. Jess: And these are just the things off the top of my head from my experience and my work. But, you can find lots of different strengths of all the different neurodivergent types, on national Institute of Care guidelines or whether you wanna look at the NHS but then there's an also lot of research papers that talk about the strengths of neurodivergent employees. For example, dyslexia the British Dyslexia Association has masses on the strengths of both dyspraxia and dyslexia. but yeah, I could go on about those all day. But if it's so important when you are working with students or supervisor, your supervisees to think about yes, the challenges, what are their strengths? Jess: How can I encourage them and empower them to not feel, oh, just because I have a, a hidden disability, or I'm neuro divergent that I'm behind or I'm worse off than everyone else, which is not the case. Quick interjection. If you are finding this episode helpful, but you are driving, walking the dog or doing dishes, just remember this. When you're done, head to the PhD life coach.com and sign up for my newsletter. We've all listened to a podcast and thought this is great. I should do something with it, and that didn't. That's where I created the newsletter to help you actually apply the stuff that you hear. Each week you'll get a short summary, some reflective questions on one simple action that you can take right away. You'll also get access to a searchable archive of all the past episodes so you can find the exact one that you need to help with your current challenges. Plus all newsletter subscribers get a free webinar every single month on a topic that affects all PhD students and academics, and you'll always be the first to hear for when my membership opens to new members. So once you're done listening, or even right now, go sign up for my newsletter and make sure you don't miss out. Vikki: So important and I love, I think that notion of the spiky profile and thinking about both at the same time is really useful because I've certainly seen with supervisors, and remember, and we'll talk about this later, listeners, you know, supervisors might have autism too. Vikki: This is not just about PhD students having autism, but certainly if you are a neurotypical supervisor and you have a neurodivergent student, sometimes it can be really confusing, right? Because you're like, Jess is brilliant, she knows her stuff so well. She's so on top of everything. I don't understand why she's having a freakout about talking at a research group meeting or whatever. Vikki: She knows this stuff back to front, inside out. I can't shut her up about it in meetings. This makes no sense. I don't get it. And so I think really recognize, because if you don't understand that, it can be so confusing to understand why someone's having such strong emotions about something. Yeah. That you know they're perfectly capable of 'cause they're so good at that other Jess: Mm. Absolutely. And I think that's the kind of misconception of, especially from my experience, women who are late diagnosis, that they've learn to mask and they've learn to manage all of this. And it gets to a point of burnout and significantly impaired, daily functioning where women just can't, basically can't manage anymore. Jess: And I think that's really important is having that curiosity and that open communication to say, these are my strengths and these are the areas that I find difficult and this is what happens. And I think having a psychologically safe environment, even though it's an overused term, but somewhere where you can say, Hey, this is really difficult, or this is causing me a lot of anxiety. And being real and honest I think super important to be able to acknowledge it and hit get it out in the open and move on. Because I think the supervisory role isn't always an easy one 'cause you're both, you know, an academic and you're pushing the student further ahead, but then you're also acting in some sort of pastoral capacity, whether you have officially given that term or not, but you are meeting the student, you know, most regularly compared to anyone else. Jess: So you will see that kind of ups and downs. So, it's really important to have that kind of open conversation and that also then takes awareness of both the supervisor and the PhD student. I think that would be my recommendation is reflecting a lot and thinking about what you want to share, but, and explaining why. Jess: 'Cause I think the supervisor's not there to fix everything 'cause it's very much a independent journey, but they want you to do your best. So you're trying to helping them understand how you can get there. Vikki: Yeah. I've done a few episodes recently where we've talked about mental health, we've talked about doing challenging research. We've talked about doing PhD with chronic illness and other disabilities and that sort of thing. And in all of them I try and find this balance between what can you do as an individual so you've got something that's kind of a bit empowering, that I can grasp hold of this and change my own situation. Vikki: Yeah. Whilst also at the same time recognizing that you are not responsible for the environment, that universities have a duty of care to support students with different needs. Yes. So I wanna kind of talk with you about both of those. So let's start with the individual students. So if there's a people listening, which I know they a hundred percent are, so people in my audience who have autism themselves, both students and academics, what can they be doing that can improve their own situations? Jess: Yeah, that is a really great question. I think first and foremost, acknowledging that you are neurodivergent and you are not neurotypical and getting rid of neurotypical expectations of yourself, knowing that you will not necessarily work nine till five. You will not sit down at your desk, nine till five. Jess: You may do, but you most likely won't. And so it's not acknowledging that, you know, some days you may have, you know, this kind of idea of a spoon theory where, you know, your maximum number of spoons might be five and some days it might just be one spoon. And this is really difficult to do. But acknowledging today, I have one spoon, so I'm gonna do one little bit. Jess: If I have five spoons, I'm gonna crack on and maybe do a lot more. So first of all, neurotypical expectations. Get rid of them. Secondly, I would be very careful about your environment. What is draining and what is, you know, not draining is probably the better way of saying it. So if you're studying or if you kind of force yourself to work in an area that is really draining, whether it's sensitivity to noise, to light, kind of comfort, you know, the chair you're sitting on your workspace, you know, be really careful about like where you put yourself. Jess: 'Cause as, as an autistic female myself, I'm very sensitive to light, to noise, to my surroundings. I can't work if people are in the area and that they might be watching me work and they might not be, I don't do well in a shared office, in a shared environment. I don't get anything done 'cause I'm too worried about like, oh, how, how does my face appear? Jess: Do I look friendly? Do I look grumpy? Am I like fiddling with my feet? 'cause I'm trying to concentrate, you know, that's not socially acceptable. So finding an area where you can be comfortable, I think is that you are in charge of that. Whether that is, you know, in the floor of the library or whether that's a home in your bedroom or whether that's your kitchen table, that's something that, a practical nature is useful. Jess: One other thing you can do is, and I know it can be tricky, but applying for disabled students allowance. So if you are diagnosed, you can then use that, and get support, whether that's physical support. So in terms of, you know, clearly laptop or kind of software that can help you, it might be you're able to access coaching, or you're able to have, you know, a new desk and chair that's more comfortable. Jess: And that works on an annual basis, so you're able to get that each year as a student. And if you are a supervisor listening, you should be able to get access to work. So your access to work through the government enables you to, the government's hope is to stay and work and to keep you employed. Go check it out 'cause it is really useful and it also works for those who are self-employed as well and you're able to get access to that. Vikki: Um, and again, and obviously just for listeners listening, this is kind of UK centric in the specific Jess: Yes. Apologies. Vikki: All good. But just to clarify that for my many listeners who are not in the UK Yeah, most places will have similar versions of that. Jess: Yeah. So that would be, get someone to help you to sort that out if it's difficult for you to do. So I think in the last one is probably being kind to yourself. 'cause I kind of mentioned at the beginning, I think especially if you have a late diagnosis or you are entering, you're just starting academia again, it's watching what you say to yourself in your head and which is very much easier said than done. Jess: Um, but often it's thinking about, you know, the shoulds I should have, could have, you know, and you talk to yourself the most. So it's trying to be kind and, and look at what you have managed to achieve. Jess: Having goals each week on things that you can try and meet, um, realistic goals are really helpful when you have days that you are not achieving or you are not completing something and due to maybe your energy levels. Jess: The last one would be just keeping an eye on yourself and looking after yourself. So it's easier said than done of course, but eating well, trying to get as much sleep, rest, exercise as the usual. Jess: I took myself out for a short walk earlier today 'cause I was stressed out and overwhelmed and that really helped getting out in the sunshine, seeing, seeing some nature. Yeah, I'm not great at it, but trying to put in these routines, um, it does help as well. Vikki: Definitely. Here's something that I've always found difficult in both when I was supervising, but also now with with clients sometimes as well. How do you find the balance between accepting things are the way they are and there, there are some things that you are never going to change and mm-hmm versus the things that with support and development, you could learn to do, if you see what I mean. I know we never, I'm not talking like we're gonna develop a way autism and we wouldn't want to, that's not what I mean. Vikki: But like I see some students who have autism being quite like, I can't do any of those things. Yeah. I have autism. I can't do them. And I see others being a bit more like, okay, if you want me to do a presentation, I'm gonna need this, this, and this in order to make that possible and I need some padding either side of it to allow me to decompress and blah, blah, blah. Vikki: Where do you find, especially, you know, maybe I'm just thinking about it as a supervisor again, but where do you find that balance between encouraging somebody to consider ways they could be supported to try something versus not pushing them to do something that's not what their brain yeah. is set up for, or whatever? Jess: Yeah. I think it's a tricky one. My initial answer would be it really depends on the individual and it depends on whether it's a matter of confidence and, you know, believing in themselves or whether they will most likely have a meltdown or a shutdown down as a result of that experience. Jess: You've got to be very careful understanding the difference, I think. And it might be that they are able to build up small steps so that they then avoid a shutdown or avoid a meltdown, or it may be that that's not possible. And I guess it depends on the individual and what their goals are. Jess: I think, you know, as students come to you for coaching, it's like what are their goals and finding realistic goals and where they want to get to and what those small steps in between look like as kind of wins. And in terms of accepting, there may be some things that they may always get really tired in social environments that may never change, but it's can we minimize which social environments they go to? Jess: Can they join lectures online? Can they get the support in terms of maybe more counseling from the university to talk through things or kind of like you said, like what buffering and what padding can be put in to help them. Jess: Or it may be that might not be something that they'll ever grow in and that might stay. Just like someone who's maybe nonverbal, may never be verbal, may always, use for example Makaton or another sign language to express what they're saying. Jess: So it's very unique to the individual. It's not a hard and fast rule. I think it's as a supervisor, as as a coach, it's thinking about, I guess what is the goal for them? Where do they want to get to and how, what, maybe working together, what are achievable steps to get there? Because only they will know themselves and what they're capable and what they're really just saying. No, I can't do it, but actually they can. Vikki: Yeah, and that's the difficult bit, isn't it? I think sometimes, especially if you're late diagnosed and you've spent time telling yourself you should be different and things, I think sometimes the person doesn't necessarily know which it is either. 'Cause I can see it happening both ways round, right? Mm-hmm. Vikki: That, especially somebody late diagnosed being like, no, no, I can, I can learn how to do this. I can handle this, da, da da. 'cause they don't wanna accept that they can't. Yeah. Yeah. But then on the other hand, people being quite fixed at, no, I definitely can't when actually it's sometimes, not always. Yeah. Sometimes the lack of confidence that you talked about. Yeah. Actually with the good support they could. And so I think that makes it kind of extra complicated 'cause it's not like the person with autism has this absolutely clear perspective Of exactly where their boundary sits with that. Jess: True. Yeah. That's true. I'm afraid, I don't have the hard and fast rule with that. It is a unique and engaging on the person, how much you can push them and encourage them. And you're very much saying it from a place of, I think you have this capacity, can we try it together? Jess: And they might say no. Or they might say, actually no, Vikki, I'm gonna take a shot. Let's, let's try this or like four sessions later, they might say, actually Vikki, I realized I said no to this, but actually I think I might try it. And it might just be building that trust with you to find that they might try that again. Vikki: I really like this sort of figuring it out together, having that kind of, whether it's a supervisory relationship or coaching relationship or wherever this sort of help, let's figure this out. Let's think about what that would look like, what might make that possible. One of the qualities, so I talk about being your own best boss quite a lot, and one of the qualities that we talk about a lot in that is curiosity alongside compassion. Curiosity, coming from a compassionate perspective, but being like, oh, I wonder if this would help, or I wonder if we'd be better off just saying, we are not doing those things for a while. For sure. Yeah. Or having that kind of thing of let's figure things out. Let's be open and honest and see what we can do here. Jess: Yeah. I think you quite right. It, it's a relationship, you know, it's a professional relationship, but it's still a relationship and it's one way you can kind of explore things and think, okay, what is possible? Jess: You know, what, what happens if we try this? What, you know, hypothetically, what would that look like or what would come up or maybe where have you done this before? Vikki: So we sort of started there talking not only about what people can do for themselves, but also how supervisors can support students with autism. Yeah. Um, let's, let's build on that a little bit more so how can anybody who is neurotypical in the university environment so this, whether you're a student or a supervisor, how can they support and make the most of working with people with autism. Jess: Yeah. That's really great. And I think even the fact that the supervisors are asking, you know, how can I make the most of this? How can I empower or support my supervisee is the first step you really want. Jess: But I think what I would kind of initially say is, you know, if the university has any sort of neurodiversity awareness training, go to them, you know, learn, I think is the key thing is to learn, you know, what might it might look like. Jess: And then secondly, acknowledging that each person's experience and diagnosis looks different or, or you know, that how they are neurodivergent looks different. So I'm autistic, but you know, you might meet somebody else who's also autistic and we may come across differently. And I think in the reason I'm saying is that it's important for a supervisor to think about, maybe starting like a How to work with me document. Jess: And that might look like, you know, preferred communication styles. So again, talking back to what we said before, like shall we have an email chain or shall we have an email with a summary and then we have a teams meeting and maybe we have videos off or videos on. They have may be transcription if transcription's allowed to kind of record what's being said or allowing note takers into the meeting. Jess: So it's that kind of thing would be included in the how to Work with me document and then setting clear expectations as to this is how often we'll meet, this is what we're gonna be covering. This is my remit of what, you know, I don't want, maybe either doesn't want to talk about anything personal. Jess: They might not want to be asked, you know, what they got up to the weekend. That's okay. So those kind of I guess rules of engagement is the maybe a nice way of putting it. And then also being prepared to continually reflect on what's working and what's not working as well and trying to create a space where that can happen. And all this is best practice and, you know, in an ideal world, and it's understanding that supervisors are usually squashed into their other lecturer duties and head of whatever they're doing. So it's trying to create something that's simple and effective rather than an extra burden of time and energy. Vikki: Yeah, definitely. And I think it's really important to recognize that the environment in which people are supervising is, is not always easy. But I also think that. You know, this stuff should make everyone's life easier. In fact, so much of what you said today just really strikes me as just universal good practice, right? Yes. And I know that's kind of the principles of universal design and all that, that most of the things that are set out for people with disabilities or neuro divergences, um, will, it will benefit anybody. Vikki: One that we haven't really talked about that I think is quite useful is thinking about sort of giving space for somebody to have an initial reaction. 'Cause one of the things, especially, we were talking about changing stuff mm-hmm Before, yeah. One of the things that I've noticed, both in supervision and in coaching, is that sometimes somebody with autism will have quite a strong initial reaction to a change. Vikki: Yeah. But that if you, as the person who's either suggested the change or that supervising that situation or whatever, can manage your own emotions about their reaction. And stay kind of calm and present. Then often with some time, and the amount of time can vary hugely. Right. Vikki: Whether they need to go away and come back tomorrow, or whether it's a five minute, have glass of water and go stretch your legs or whatever. But learning to manage your own emotions in that moment and not feel apologetic or defensive or all of those things, and just kind of giving it space for a second. Jess: Yeah. Vikki: I think can then really allow that person to have their legitimate reaction. But then also afterwards to choose what their actual response is. Jess: Mm-hmm. I mean, yeah. And I think that that then comes back to the how to Work with me document as to if there are changes. Because, you know, in an ideal world, PhDs go to plan. Everything follows, you know, step one, step two, step three. Best chapters are written up, done. But you know, nine times out of 10, that's not the case. Whether the data collect was incorrect or whether, you know, the systematic review turned into systematic review and a meta analysis. Jess: But I think it's then saying, okay, if changes are made, how would you like 'them communicated? Yeah. Would you prefer 'them over an email and then we'll discuss in a meeting? Or would you prefer me to bring up in a meeting at the end? And then you can go and we can discuss it. And again, we're not gonna be able to cover every eventuality in a how to work with me document, but acknowledging that part of being autistic is you may not cope with change or you may not manage that in a neurotypical way. Just as if you are excited about something, you may impulsively say something that's great or you may say something that wasn't very helpful and you need to apologize. I think it's acknowledging that, that that impulsivity is part of an ADHD diagnosis. And that it's not someone just being rude or, you know, having lack of self-control 'cause it's a legitimate executive function. Like it's, it's something that's not, it doesn't go so great always. Jess: Um. I think it's, uh, those things are important to consider. Vikki: Yeah. And that's where I think, so I do supervisor training, not specifically on this area. That's way beyond my scope of practice, but general supervisor training. And one of the things that we talk about a lot in that is not projecting your own reasoning for behaviors onto other people's behavior. Vikki: 'Because often if somebody is late for a deadline, say if the supervisor's, somebody who take deadlines very seriously, they assume that means Jess isn't taking this seriously. Or whereas we know that regardless where you've got, ADHD, autism, or nothing at all, sometimes you miss deadlines even when you are taking it very seriously. Vikki: And similarly, I think, you know, like with the impulsive thing, sometimes somebody who's very neurotypical, quite reserved. All those things might, well, I would only say that if I was being really rude and disliked the person. And so one of the things we spend quite a bit of time thinking about is how you can almost have that kind of flexibility to recognize that there's a likely, especially if you know that they've got diagnoses, there's likely to be a bunch of reasons why they just said the thing that that came out grumpy. Jess: Yeah, sure. Vikki: And it's hard, right? It is. Even if you're neurotypical, you're tired and you're busy and all those things, it's hard to always do that. But even if you can do it in retrospect Yeah. Vikki: Where afterwards you're like, yeah, that might have been impulse rather than anything else or whatever. I think it would really help. Jess: And I think, you know, as, as I said, I'm doing a PhD and I'm still learning and I'm still, you know, getting things wrong and, and, you know, apologizing or, you know, saying things and being like, should anyone, is anyone bothered by that? Like, I don't know. Should I send an email? Jess: Should I send a teams message? Am I overthinking it? And this is where it's, it's great if you have, you know, a couple of supervisors and perhaps they all have maybe different roles or different strengths. You know, that some might be more pastoral and some might be more academic. Jess: And maybe you have the opportunity to sense check with maybe the pastoral type supervisor, you know, how did that go? What do you think? And, you know, this is all an ideal world, but, it can be quite nice when the team is a bit more blended and even if, you know, someone might not be necessarily that pastoral focused, it might have someone else in the team that can support. Jess: And yeah, it also, that added layer of complexity is if perhaps, your supervisory team, someone is neurodivergent and maybe very different, you know, in how you work. Um. So, yeah. Vikki: Or very similar, right? And this happens personality wise as well as neuro divergent wise, is there's, there's obvious challenges if you've got someone who's neurotypical and somebody who's got autism, for example, they may have misunderstandings. But I do think there is also, I have been personally in situations, not with PhD students, but with like undergrads and that sort of thing where I, there's me and my enthusiastic non-diagnosed ADHD self and they've actually got ADHD and every meeting, it's just like, we could do this. Jess: Oh yeah. Yeah. Absolutely. So many ideas. Vikki: And if you haven't got awareness around that, and similarly, you could have two people who are autistic that are just absolutely fixed on this is how we are doing this, this do, do, do, do. And then something comes along and no one's got the kind of capacity to be flexible about it. Vikki: So I think. It's not always when you're different. I think there's danger in similarities too sometimes. Jess: And I think your supervisor training, it sounds really important because I think a lot of, from my understanding, a lot of supervisors, and this is just my experience, I don't think they have a lot of training and I don't think that's provided. Jess: So it's very much they have to figure out as they go along. And, you know, they want their PhD student to finish within the allotted frame of time and they want them to meet the goals. There's a lot of pressure on them to help the student get there. So I think it's not the easiest role for them either. Jess: And I think often the student doesn't, if they've not been around the university set, they may not know that or appreciate that. So it's another thing to bear in mind and say, this supervisor may only have, you know, five hours a month to actually support you if that. Vikki: In my experience, most supervisory training focuses on procedures, right? It's like, what forms do you need to fill in, when, what requirements of you, what's the minimum rules of engagement, right? The you have to meet once a month and blah, blah, blah, all that stuff. Vikki: And some universities do provide others, as I say, I, I provide much more detailed supervision, which really gets into how your thoughts and emotions influence the way you supervise and how expectations of supervision can be so different between different people. Vikki: Yeah. Not just with neurodivergences but also with people who come from different countries who have different experiences with their own supervisor previously as to what they expect a supervisor would provide. Um, yeah, I think it's a huge issue and I think it's something that invite universities should really be investing a lot more in than they do. Jess: Yeah, absolutely. And the thing is, I'm, I can only speak for the clients that I've had and the clients I'm working with, but then also for myself, you know, I'm, you know, a heterosexual white woman, I don't have that kind of intersectional lens. I'm not able to talk from that. And I think that's something that is, is also huge in understanding, you know, and listening to autistic voices from an intersectional lens, whether that be, you know, gender identity or whether that is race. And that's something that I'm painfully aware of when I do my training is, you know, there's only so much published research as well from those different intersectional lenses. So, that's really important to think about and consider, um, as well. Vikki: And probably I assume variations in diagnoses rates as well. I mean, you mentioned gender differences in diagnosis, but I would be amazed if there weren't differences in diagnosis rates amongst different ethnicities and races. There are with most things. Jess: Yeah. Mainly also due to stigma and understanding, and how it looks maybe as well. We're so far behind in that sense. And that I mean, they've only just decided that you can be diagnosed with ADHD as an adult. I think it was like 2012 that, that was possible. And then to have a combined diagnosis. Just there's so much progress still yet to be done. Vikki: And we obviously wanna, we wanna avoid, 'cause I do think there is a tendency for people who have a kind of passing interest in this stuff to sort of notionally diagnose the people around. And I don't think that's helpful either. No. I'm a big believer that if you self identify as having any of these things, then I'm down 'cause you know Yeah. You, if you identify, you know, you Yeah. You know yourself. There's a lot of barriers to getting officially diagnosed, but for sure different to diagnosing someone else. Vikki: Yeah. But one of the questions that I encourage people to think about is how would I behave if I knew they were autistic, for example. And asking yourself, are there ways you can just do that now anyway? I would give them really clear instructions after a meeting and I would make sure I pre warned them if there was something coming up that might be surprising. Vikki: You could just do that for everybody without ever mentioning the A word. Yeah. You know? Oh, definitely Never telling them your suspicions, but instead of just assuming that they're stubborn or whatever. Just do those things and Jess: Yeah. And I had that with a client the other week was, I had people coming up to me after the training I did all during one of the breaks, and their question was, you know, what do I do if they're not diagnosed or I suspect they are, how, what do I do? And I'm like if you are managing someone, you will understand what the strengths and challenges are of all your employees and who you're working with, and then you will help them play to those strengths and support them in their challenges. Jess: So how to work with me guide and I keep talking about it, but it is just a what works for that person and it doesn't matter if they have a diagnosis or not because from a practical, everyday working style, not necessarily from a legal standing, but it is, it's so important to treat someone as individual. Jess: And if you're not doing that already, start doing it because your team will all work differently regardless of whether they neurodivergent or not. So it's, you get to know your team and like you said, if, if you think that they may be that, that, that way ask and just say, don't say, are you autistic? Say, how does that work for you? Jess: Like, do you enjoy that kind of setup? Does this space work for you? Just from a curiosity, decent human being perspective. It's not always rocket science then I think people can be really worried that, you know, they have to give someone a diagnosis before they can start asking questions. Jess: But it's how you ask the question and it's what kind of questions you're asking in terms of, you know, I noticed that you were quite quiet in the last meeting, you know? I want to make sure all employees voices are heard. You know, if you've got any thoughts, feel free to send me an email with them. And you're not singling someone out in terms of you think they're autistic, but you are, you are just kind of asking them, how did that go? Vikki: Yeah. So you've started touching on this already, but what can people do at a sort of institution level to make things more inclusivefor people with neuro divergencies. Jess: Yeah, so I think a lot of organizations already have like an equality policy, so a DEI policy. And in those policies they include disability, but they don't explicitly talk about hidden disability. So neurodiversity, , to start with having a visible neurodiversity policy on the website, on their job, saying we support, you know, an inclusive and neuro inclusive environment. Jess: Doing training on how to be inclusive in recruitment, how to, support managers, you know, to train them as to how to work with neuro divergent employees. What would be wonderful would be mapping the workplace of all the, you know, campus. You know, what, what areas are quiet, you know, designated space. Jess: Just like often have a prayer space. You know, are there quiet spaces for neurodivergent employees or students? The canteens are an absolute nightmare for me. The lighting is a nightmare for me personally. For many people that I speak to, they can't stand, just the space, they're very sensitive. Jess: It's very draining. For many people I work with, they often have like a watch, like a Garmin or something, and their body, they have a body battery or some sort of thing where if they're on campus, it goes from maybe 90 down to five. And it's all of those things that are intangible that, that really affect. Jess: So having some sort of sensory map as to say these are the areas that are high traffic, these are the areas that are quiet. Even if it's color coded would be useful and allocating space. What else? Uh, training everyone from, you know, people at reception, you know, there's a lot of sunflower lanyards floating about on campuses now, which is great, but what does that actually mean? Jess: How can you support employees or students, down to maybe the catering teams to, the academic staff that support staff to the librarians, helping everyone understand what that might look like, and do regular ones and mandatory. I think a lot of this kind of stuff, unfortunately, is optional. Jess: But you have, you know, one in five or one in four are neuro divergent, you know, the stats are there. The NHS England and, and NICE guidelines is there, you know, , whether they realize they they're neurodivergent or not, or whether they're disclosing the neurodivergent or not, they need support. Jess: I think it's from, you know, if you talk about the life cycle of an employee starting right, recruitment and kind of advertising, you know, using clear, simple language in the job description, not having, you know, must be a self-starter and must be, you know, all these kind of lingo that might not necessarily be relevant to the job role just copied and pasted on from a previous job role. Jess: And that that will discourage people from applying all the way through to, okay, now you're managing someone. You've never managed someone who's neurodivergent before, what's available to a, the manager and to b the employee? And how can you support them? Can you encourage 'em to apply for access to work? Jess: What is that? Help the employee understand . Start having a conversation as to what reasonable adjustments can we make? That should have also been discussed in that kind of initial period as to what kind of things might they need? Jess: And that's a conversation with HR. The first step is awareness and training. And then after that it's digging deep into kind of strategy and policy to really integrate it across the organization. Vikki: It really resonates with my episode a few weeks ago where I was talking to Kyrstina Francois about doing PhD with physical disabilities and illnesses. And one of the things that she was really talking about is how it's exhausting and often very difficult to have to suggest your own accommodations because especially ...so she has illnesses and conditions that have come on over the last year or two. Vikki: So it's not something she's always lived with or anything like that. And they're like, what do you need? And she's like, I don't know, what can I have? And that strikes me as quite similar to some of the stuff you are saying here, that having almost packages of if you are running a conference you need to do these things for your neurodivergent members. If you are running a module, you need to do these things. If you've got a PhD student, these are the options that you could put out like say for them to choose what might be useful or whatever. Jess: Mm, for sure. And I think what works for some neurodivergent students might not work for others. So for example, if you're dyslexic, using dyslexic fonts or installing a Chrome extension, that makes everything into a dyslexic font as readable. You know, using apps that can make your screen a yellow color and providing high contrast helps you to see better and read better, but all of these things, it's, it's, it's providing that kind of, the training and documentation to, to help, you know, supervisors and, and lecturers and, and also students know that that exists, you know, a lot of this stuff is free. Jess: Inclusive teaching is a huge area that I looked at when I did my fellowship to the Higher Education Acacemy, you know, how can we be more accessible and inclusive. And I think Covid was a, you know, although a horrible experience, it meant that a lot of lectures had to be done online and a lot of things were recorded. And I did my masters during that time, and that was brilliant for me because as someone with ADHD, I was able to get up and walk around and move about whilst listening. I was able to pause things, go back over things. I think it's, knowing that different approaches work for different students. Vikki: Perfect. Now, if people have been interested, engaged, inspired, all of those good things by the stuff you've said today, as I'm sure they will be, where can people follow you and find out more? Jess: Sure. So, I'm quite active on LinkedIn, so you can first head over there and drop me a message or you can follow our company page. We also have a website, neuro natives.com , feel free to contact us there, with any inquiries, whether you want, coaching, whether you want, training and awareness sessions, or whether you want something more tailored, we can do whatever you need. I'm afraid I don't have Instagram, don't have Facebook too distracting , so you'll find me on LinkedIn, and also our website. Vikki: Yeah, perfect. And I will put links to your LinkedIn in the show notes and to your website. Thank you Jess, so much for today. That is super, super important and it was, yeah, wonderful having you here. Jess: Thank you so much. It's been a pleasure to talk through all of these things and I hope it's been useful for the audience and yeah, it's lovely chatting to you as well. Vikki: Thank you everyone for listening. I'll see you next week. Thank you for listening to the PhD Life Coach podcast. If you like this episode, please tell your friends, your colleagues, and your universities. I'd appreciate it if you took the time to like leave a review, give me stars, stickers, and all that general approval as well. If you'd like to find out more about working with me, either for yourself or for people at your university, please check out my website at the PhD life coach com. You can also sign up to hear more about my free group coaching sessions for PhD students and academics time.